Thursday, August 27, 2015

Such Strange Days

So many strange days.

I've been sick most of this summer. I've had days of fun, of joy, and of wishing I had enough energy to get beyond the couch in my living room.

My medical team has been working hard to try to figure out what is wrong. One set of specialists felt it was Celiac's Disease, so I went on a gluten free diet. Another set of specialists were concerned by warning signs that my liver was being damaged.

Summer is close to over. Today I'm no longer on a gluten free diet, and my belly has never been happier.

I also have an answer for the pain, and the damage, and the tests that showed something far more aggressive than my other diagnosed problems were - autoimmune hepatitis. My body is raging so hard to fight whatever is wrong with me that it's fighting my liver pretty hard.

It's okay, though. I have medicines that will help. I already feel much better based on the diet change, and I believe these medicines will improve all my issues, not just the current state of my liver.

Going slowly is what is most important for me right now. Not trying to do too much, not trying to expect too much of myself. Thankfully, I have an incredible support structure. I am so lucky to have the friends and family I do. I can't express how much my friends have saved me. My spirits, my hope, my heart - even with two pieces missing.

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